Evolving Standards of Care in Rett Syndrome Highlight The Need For Continuous Education

The treatment of Rett Syndrome (RTT), a rare, genetic neurological disorder affecting young children that leads to severe impairments, is continuing to evolve. The first therapy was approved in March 2023, and with several investigational assets on the horizon, there is a critical need to educate both community-based clinicians and Centers of Excellence on this change to the standard of care.   […]

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Adoption Of Biologics For Uncontrolled Asthma Increases By Non/Low Adopters After Continued Medical Education from Medlive

Asthma, a serious chronic lung disease, affects 26.8 million adults and 4.5 million children in the U.S. according to the American Lung Association.1 Research on the pathophysiology of type 2 inflammation has brought new targeted therapies to market that may make a significant difference for patients affected by uncontrolled moderate-to-severe asthma.2 While these innovative biologics play a significant role in treating disease, integration by healthcare practitioners (HCPs) remains inconsistent due to barriers in provider knowledge and confidence.   […]

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Outcomes Data Reveals Knowledge Gaps Among Those Treating Triple-Negative Breast Cancer

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Triple-negative breast cancer (TNBC) remains difficult to treat, and disproportionately affects women of color. To address these challenges, PlatformQ Health joined together with TOUCH: The Black Breast Cancer Alliance and the National Breast Cancer Foundation to develop a tethered educational program to empower patients in treatment decision making and to help facilitate better patient-clinical communication through sharing of real-world outcomes.  […]

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What Medical Education Reveals about Barriers to Adoption of Biologic Agents for Moderate-to-Severe Asthma

For people with moderate-to-severe asthma, personalization of biologic agents is warranted based on factors such as biomarkers and comorbidities. PlatformQ Health and the Asthma and Allergy Foundation of America (AAFA) conducted a CME-certified, case based, expert panel discussion that featured a live Q&A session with leading faculty from the Asthma Center at Cincinnati Children’s Hospital Medical Center and the Division of Allergy and Immunology at Northwestern University’s Feinberg School of Medicine, as well as AAFA’s public health manager. […]

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Clearing the Air: Breaking Through Barriers in Asthma Care

Decades of research make clear stark disparities in asthma prevalence, mortality, and healthcare utilization along racial and ethnic lines. Black people in the United States, for example, are 1.5 times more likely to have asthma, five times more likely to visit emergency rooms for asthma attacks, and three times more likely to die from the disease. […]

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Unexamined Ways to Drive Clinical Trial Enrollment

Clinical trial recruitment has been a persistent problem, with studies showing up to 55% of trials are canceled prematurely due to low enrollment rates. These rates are even more dismal when it comes to diverse populations, including ethnic and racial minorities as well as seniors. Common methods for improving trial access such as transportation supports have been well documented, yet there are numerous other avenues for improving the patient experience that have yet to be uncovered.  […]

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Program Outcomes Demonstrate High Need for Immunotherapy Education

Immunotherapy is increasingly being used to treat patients with melanoma and other types of cancer. Management of these therapies differs distinctly from previous standard-of-care options such as chemotherapy. Optimizing care involves educating a multidisciplinary healthcare team about therapy management as well as educating patients about therapies and the factors that can influence outcomes. […]

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A Pressing Need for Gene and Cell Therapy Education

The explosion of gene and cell therapies brings promise – and a plethora of questions – from patients and healthcare providers. CAR T-cell therapy is a notable example. These one-time treatments are providing durable remission and in some cases cures of recurrent blood cancers. Due to the complexity of CAR T-cell therapy, it is currently available exclusively at specialized medical centers. […]

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Multi Stakeholder Collaborations Poster Selected for NORD’s Lightning Round Poster Presentation

PlatformQ Health is excited to share that our poster session “Incorporating the Patient Voice in Rare Disease Education: Multi Stakeholder Collaborations to Improve Diagnosis, Quality of Care, and Outcomes” was selected to be presented both at the 2023 NORD Breakthrough Summit and at the Lighting Round Poster Presentations taking place from 4:30-5:00 PM on Monday, October 16.  […]

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Educational Initiatives in gMG, DMD and SMA

Numerous posters of educational outcomes have been published at major conferences over the past three years across neuromuscular conditions, including Duchenne muscular dystrophy (DMD), myasthenia gravis (mGM), and spinal muscular atrophy (SMA). These posters highlight the advantages of aligned patient/provider education for closing knowledge gaps and aligning expectations between patients and providers. […]

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Summer 2023 Partnership Newsletter

It’s been a busy season here at the Q, with many educational programs launching across therapeutic areas. Thanks to partnerships with leading advocacy and membership organizations, we have been able to extend access to our trusted education to even more patients, families, and health care providers. Program Highlight We’re particularly excited to share that we’ve […]

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Join Us for a Conversation about Improving Equity in Clinical Trials

We’re proud to sponsor the 3rd annual Chief Patient Officer Summit, and to participate in an important conversation about improving equitable representation in clinical trials. With five years of producing digital education focused on trial diversity, we’re pleased to be able to share insights into strategies that can change behaviors and break down barriers to trial enrollment. […]

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Young Woman Forms the Chrysalis Initiative Amid Stage 4 Cancer Diagnosis

“Black women are 71% more likely to die of breast cancer than their White counterparts, so you have to question what is going on here,” she says. “Although there was knowledge in the medical community about inequities, it seemed like the default response was that this was all associated with poverty or lack of insurance, but what I found is that it’s more nuanced than that. There was bias that was contributing to these disparities. Even if a Black woman had adequate insurance and income, she was often not being presented with the standard of care.” […]

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Poster Session Demonstrates Value of Patient Voice in CME Session for Familial Hypercholesterolemia

Data collected before and after continuing medical education on the management of familial hypercholesterolemia (HoFH) showed that provider knowledge and competence was notable improved after the session. A poster session presented at the 2023 National Lipid Association Scientific Sessions demonstrated that CME that included patient voice enhanced the ability of providers to adapt to the changing HoFH treatment landscape.  […]

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CME Education Improves Competencies around Treatment of Multiple Sclerosis for Diverse Patients

There is a high burden of multiple sclerosis (MS) in the Black, Asian, and Hispanic communities, yet clinicians are often not prepared to care for diverse populations of patients. To address this issue, PlatformQ Health and the Consortium of Multiple Sclerosis Centers partnered to develop CME activities, including a 60-minute lecture and 75-minutes of case-based […]

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Outcomes Data Supports the Value of Tethered Education for Educating Providers and Empowering Patients with Asthma

With the growth of biologic agents to treat severe asthma, there is an increased need for shared decision-making between patients and healthcare providers. A poster recently accepted to the 2023 American Thoracic Society conference highlights the value of tethered education (otherwise called aligned education) for this purpose. This involves having a patient program, followed soon after by a provider program where we share insights from the patient program with providers. […]

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Advancing Alzheimer’s Disease Management – Strategies for Early Diagnosis

Dementia is one of the biggest global health crises of the 21st century, according to leading neurologists. More than 50 million people are living with the disease, and that number is expected to triple by 2050. Roughly 60-80 percent of dementia cases are Alzheimer’s disease. Specialists are raising awareness that neurodegeneration can begin years, and sometimes decades before a person becomes symptomatic. This is one reason early diagnosis is so crucial.  […]

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Reducing Disparities in Alzheimer’s Care: Creating Opportunities to Optimize Brain Health

Global cases of Alzheimer’s disease (AD) are expected to triple by 2050, according to a recent study presented at the Alzheimer’s Association International Conference. African American and Hispanic American communities are disproportionately affected by the disease, with African Americans having two to three times more instances and Hispanic Americans having 1.5 times more instances of […]

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The Power of Continuing Medication Education to Enhance Health Care Providers’ Index of Suspicion of Rare Dermatologic Conditions

Education about rare diseases is crucial to reducing time to diagnosis and providing optimal care for patients. Recently, PlatformQ Health worked with our strategic partner the National Organization for Rare Disorders (NORD) to produce digital education for health care providers (HCPs), focused on the rare dermatological condition prurigo nodularis. The 60-minute continuing medication education (CME) […]

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PlatformQ Health Secures Two Posters at 2023 American Academy of Neurology Annual Meeting

The digital education firm PlatformQ Health had two posters accepted at the 2023 American Academy of Neurology Annual Meeting, held in Boston from April 22-27, 2023. The company regularly shares outcomes from its health care provider (HCP) and patient-focused educational programs. During the annual meeting, PlatformQ Health’s posters focused on the results of recent HCP educational programs focused on Rett syndrome and Alzheimer’s disease. […]

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A Patient-Centric Outcomes Approach That Impacted 26 Million Patients in 2022 

PlatformQ Health had 20 posters accepted at major medical and healthcare conferences during 2022. We’re pleased to share the posters, highlighting key outcomes from our educational initiatives across an array of therapeutic areas. Oncology 2022 Alliance Industry Summit Supplemental Digital Resources  CME Program Closes Critical Knowledge Gap in Cancer Immunotherapy Treatment  Presenting Education Outcomes at […]

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Online Education Sheds Light on Gaps in Care for Chronic Spontaneous Urticaria

Patients with chronic spontaneous urticaria (CSU) often suffer with unresolved symptoms, despite numerous visits to different healthcare providers. In a recent poster presented at the 2023 American Academy of Allergy, Asthma, and Immunology, PlatformQ Health evaluated the impact of digital continuing medical education (CME) on optimizing diagnosis as well as antihistamine dosing.  […]

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Four-part Digital Education Fosters Clinical Practice Changes in Gastric and Gastroesophageal Junction Adenocarcinomas

Gastric or gastroesophageal junction (GEJ) adenocarcinomas are notoriously difficult to treat, but recently approved immune checkpoint inhibitors and HER2-directed antibody drug conjugates are improving outcomes for patients with these conditions. While these advances are a positive change, they do pose challenges for healthcare providers who need to learn about new regimens and practices. […]

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Winter 2022 Partnership Newsletter

A Look Back on 2022 – Connecting patients, providers, and caregivers through education As we reflect on the past year, we are particularly grateful for the connections we made with our partners, supporters, and colleagues. These connections helped us develop meaningful patient and provider education that impacted 22 million patients.  Moving the needle in healthcare […]

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Tethered Education Identifies Gaps in TNBC Care and Perceptions

Vast racial disparities exist in triple-negative breast cancer (TNBC), yet many patients and providers are aware of these issues. Women of the African Diaspora (WAD) are often diagnosed at a more advanced stage and experience higher rates of TNBC-related mortality. Though the TNBC treatment landscape has changed with the influx of new clinical data and newly approved treatments, there is much education needed to ensure patients and the medical community are aware of these advances.  […]

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The Future of Pharma Field Force: Engaging healthcare providers through peer-to-peer education 

With an unprecedented number of drug launches, the need for field force engagement has never been greater – but it’s the right type of engagement that matters. Field reps often perceive that providers want them to identify patient opportunities with new therapies, but a recent study by Bain & Company found that providers actually want their reps to provide trend data, patient support, and introductions to top experts in their field.  […]

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CME Programs Increases Competency in Managing Neuroendocrine Tumors

Targeted therapies have allowed for better management of neuroendocrine tumors (NETs), yet this requires that healthcare providers glean new knowledge about treatment options such as somatostatin analogs. To improve provider competency and include consideration of patient perspectives in treatment selection, PlatformQ Health and Healing NET Foundation teamed up with the Moffitt Cancer Center to produce a free educational initiative for providers. […]

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PlatformQ Health Presents Health Outcomes in Myelodysplastic Syndrome and Ulcerative Colitis at BMS Poster Day 2022

PlatformQ Health was invited to present at Bristol Myers Squibb private poster day. The posters present outcomes from two educational initiatives that show positive improvements in patient experience and clinical practice. CME Education Improves Clinical Practice for Treating Ulcerative Colitis Recent changes in understanding the drivers of ulcerative colitis have changed how the disease is […]

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51st CNS Annual Meeting: Presenting Educational Outcomes on Aligning Patient/Caregiver Roles in Developmental and Epileptic Encephalopathies

The management of developmental and epileptic encephalopathies (DEEs) has shifted in recent years, necessitating changes in treatment decisions. In the wake of these changes, PlatformQ Health, the National Organization for Rare Disorders, the Lennox Gastaut Syndrome Foundation, and the University of California, San Francisco came together to produce aligned, online continuing education to support healthcare providers in their ability to diagnose and treat DEEs and help caregivers to engage in care. […]

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CancerCare, BlackDoctor.org, and TOUCH: The Black Breast Cancer Alliance Collaborate with PlatformQ Health to Promote Diversity in Breast and Lung Cancer Clinical Trials

People of color, the elderly, as well as those living in rural areas are disproportionately affected by cancer, yet are severely underrepresented in cancer clinical trials. The lack of diversity in clinical trials leaves these patients at a severe disadvantage because there is little insight into the safety and effectiveness of therapies for them. […]

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Breaking Down Barriers Between Patients & Providers

When confronting a frightening condition like bladder cancer, patients may fall into a rabbit hole of information online. It can be challenging to discern what sites to trust and where to turn. Not only are patients facing concerns about their own survival, but also worries over sensitive issues such as bladder function and sexual health. In this situation, it can be difficult for patients to open up to providers about their fears. […]

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All Together Now for Cancer Clinical Trials

Inclusive clinical trials enable more patients to benefit from therapies that can improve their quality of life. However, an under-representation of racial and ethnic minority groups in clinical trials has been, and continues to be, a major issue within the U.S. healthcare system. “Disparities in clinical research participation are well documented and, like many other […]

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The Future of Cell and Gene Therapy

Cell and gene therapies are transforming the course of disease treatment, from gene replacement that extends the lives of infants with spinal muscular atrophy, to CAR T-cell therapies that bring durable remission to patients with difficult-to-treat blood cancers. […]

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Genetic Mitochondrial Disease: Live and On-demand CME Programs Close Learning Gaps

Primary mitochondrial disease (PMD) is often missed by clinicians due to the broad range of clinical presentations and genetic etiologies. Our recent program “Progressive Myopathy: Could it be a Genetic Mitochondrial Disease?” focused on diagnosing this condition in infants, children, and adults who present with progressive muscle weakness; understanding the diagnostic workup; and manifestations of thymidine kinase 2 (TK2) deficiency.  […]

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The Value of Authentic Patient Voice in Digital Education

Enhancing CME programs with patient voice is an effective strategy for helping providers retain what they’ve learned. National Organization of Rare Disorders Chief Medical and Science Officer Edward Neilan, MD, PhD noted, “when it comes to educational materials, hearing from the patient makes it much more memorable, much more engaging, and a longer lasting educational contribution.”  […]

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2022 ASCO Annual Meeting Supplemental Digital Oncology Resources

The 2022 ASCO Annual Meeting is a place where cutting-edge research spanning all major disease sites comes together so leaders in the field can stay up-to-date on clinical trials, the latest findings, and global perspectives on oncology innovations. We are especially excited to have two accepted e-abstracts at the 2022 ASCO Annual Meeting that demonstrate the […]

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Presenting Education Outcomes at ASPHO 2022

We’re pleased to share that the conference has accepted our poster abstract “Impact of Patient-Provider Initiative on Treatment of Pediatric Neuroblastoma” at the 2022 American Society of Pediatric Hematology/Oncology (ASPHO) Conference brings together hematology/oncology professionals for premier education and networking. […]

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2022 Alliance Industry Summit Supplemental Digital Resources

Poster Presentation The Power of Education to Debunk Myths and Misconceptions about Clinical Trial Participation Among People with Diverse Racial and Ethnic Backgrounds The 2022 Alliance Industry Summit (ASI) will feature our poster about the power of education to debunk myths and misconceptions about clinical trial participation among people from diverse racial and ethnic backgrounds. […]

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CME Palooza Spotlight: Equity in Clinical Trials Is Within Reach: Patient Voices in Medical Education Matter

In our latest collaboration with CME Palooza, we hosted a webinar featuring Jeanne Regnante, Chief Health Equity and Diversity Officer of the lung cancer advocacy organization, LUNGevity, Shawn Feliciano, a patient with MS who has participated in clinical trial research and Sapana Panday, Senior Director of Digital Education at PlatformQ Health. During this conversation the […]

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Go-to Market Strategies for a Successful Drug Launch: Best Practices for Engaging Providers and Patients

A strong pharma product launch can help bolster a drug’s performance over its lifecycle. Most new drugs continue with the revenue trajectory achieved at launch. An analysis by the Deloitte Center for Health Solution found roughly 80 percent of products that met or exceeded initial expectations continued their success rate in subsequent years. That’s why educating physicians quickly in the early months of a product launch delivers a notable advantage. […]

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#ASH21 Day 3 Recap: Ensuring health equity & research findings

Day 3 of the ASH Annual Meeting & Exposition kicked off with a continuation of the Diversity, Health, and Equity track, focusing on changing the tide from paternalistic patterns and exclusion of marginalized populations to inclusion of clinical trial design and a “deliberateness” of engaging minority communities from the very start. This important effort to reevaluate the status quo is part of the hematology community’s commitment to ensuring equity and addressing disparities. […]

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#ASH21 Day 1 Recap: Tackling Health Equity and Highlighting New Research Findings

The first day of the highly anticipated 63rd ASH Annual Meeting & Exposition kicked off with a new track focused on diversity, health, and equity. As the world’s largest professional society committed to conquering blood diseases, ASH is building and nurturing a global hematology community and workforce inclusive of diverse perspectives, talents, and experiences.  […]

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End of Year Infographic: A digital peer-to-peer education model designed to drive provider awareness, engagement and adoption

Early education of the marketplace is crucial for a successful pharmaceutical product launch. We’re pleased to share how our peer-to-peer education model drives more efficient provider education as well as alignment with the field force.     Download the PDF Version: 2021-Infographic-DS Be sure to check out our other End of Year Infographics: Continuing Medical […]

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End of Year Infographic: Empowering patients on their journey to improved confidence and communication

As patients take an increasingly active role in their own care, education plays a central role. Knowledge fosters shared decision making among providers, patients, and their families. We’re pleased to share outcomes from our digital patient education model.   Download the PDF version: 2021-Infographic-Patient.pdf Be sure to check out our other End of Year Infographics: […]

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End of Year Infographic: Fostering a powerful, patient-centric, continuing medical education model

Tracking outcomes is essential to PlatformQ Health education, both as a means to continually enhance engagement and to assess knowledge gaps that support the development of future programming. We’re pleased to share the most significant outcomes across our CME programs and their impact on clinical practice and patient outcomes.   Download the PDF version now: […]

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NORD Rare Summit 2021: Demonstrating the Need for Education in Rare Conditions Among Providers and Patients

For many people suffering from rare diseases, the diagnostic odyssey is far too long. Nearly 1 in 13 people are living with an undiagnosed condition, and it typically takes five years or longer to receive the correct diagnosis. Consistent clinician and patient education about rare diseases is crucial for helping to reduce time to diagnosis […]

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Alliance Industry Summit Best in Class 2021 – Awarded for a unique outcomes approach that combined quantitative and qualitative methods to incite real change in healthcare

PlatformQ Health received the Best in Class award at the Alliance For Continuing Education in the Health Professions 2021 Virtual Alliance Industry Summit for the outcomes poster, “Unearthing the impact of Urology education through in-depth, qualitative interviews.” […]

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A Changing World: A Look Back on 2020

In 2020, PlatformQ Health’s mission to improve health outcomes through trusted digital education did not waver. We are grateful to be a steady hand for our partners, HCP and patient learners, and supporters, providing continuity through seamless shifts into the digital world. Digital education is at the heart of our past and current success, and our ability to adapt and innovate is a critical component of our future-focused orientation. […]

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NORD, FDA, and CDC Leaders Provide Rare Disease Community COVID-19 Vaccine Education Leveraging PlatformQ Health’s CONDUIT Solution  

While the COVID-19 pandemic has been socially and economically devastating for us all, the rare-disease community faces a unique set of challenges. Seeking to address these challenges, the National Organization for Rare Disorders (NORD) leveraged Conduit – PlatformQ Health’s proprietary engagement platform – to host the webinar, COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community.  […]

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PlatformQ Health, the American Migraine Foundation and the National Headache Foundation collaborate on a new tethered digital educational program

PlatformQ Health is launching, “Aligned Health Care Provider and Patient Education on Calcitonin Gene-Related Peptide-Targeted Treatment of Migraine,” a new digital tethered education program, produced in collaboration with the American Migraine Foundation and the National Headache Foundation on January 22, 2021. […]

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AAAAI & AAD 2020 Annual Meetings: Education on Atopic Dermatitis Activates Knowledge and Behavioral Shifts among Caregivers, Patients and HCPs

PlatformQ Health is excited to share results from an HCP and patient education initiative that were to be presented as two uniquely focused poster presentations at the American Academy of Allergy, Asthma and Immunology’s Annual Meeting and the American Academy of Dermatology’s 2020 Annual Meeting, respectively. […]

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