Carcinoid Cancer Foundation program Neuroendocrine tumor

New Education for People Who Have Neuroendocrine Tumors

Following two successful programs, produced in partnership with the Carcinoid Cancer Foundation, PlatformQ Health is pleased to announce an all-new program for patients and caregivers on Neuroendocrine Tumors that will premiere live at 1pm ET on August 14, 2019 on CancerCoachLive. The two previous programs focused specifically on carcinoid syndrome, a condition that effects a […]

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PlatformQ Health Rare Disease Day

#ShowYourRare – Rare Disease Day 2019

Our team works with amazing partners like GBS|CIDP Foundation International, the Carcinoid Cancer Foundation, and the ILD Collaborative to create education for the rare disease community all year round: the healthcare professionals who treat these conditions, and the patients and caregivers who live with them. On Rare Disease Day 2019, we acknowledge the realities of […]

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Idiopathic Pulmonary Fibrosis (IPF) CME Patient Education

Exploring Our Current Knowledge of the Pathophysiology of Idiopathic Pulmonary Fibrosis: New CME

  Find new Idiopathic Pulmonary Fibrosis CME on ResInsightsLive, and a program designed for patients and their families on RareDiseaseLive. Idiopathic pulmonary fibrosis (IPF) is a rare pulmonary disease caused by the formation of scar tissue in the lungs without any known triggering factor. Across the globe, five million people are affected with a prevalence […]

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Rare Disease Day PQH

Rare Disease Day 2018

World Rare Disease Day is celebrated on the last day of February each year (often February 28, “rarely” on leap day). Since 2008, this day has grown into a global initiative involving more than 90 countries and hundreds of cities to raise awareness of rare diseases and encourage researchers and leaders to address the needs […]

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rare disease zebra

Rare Diseases: Why We All Need to be Aware

While rare diseases are uncommon, there are a multitude of them. In the US, there are approximately 7,000 diseases that are considered to be rare. It is approximated that there are nearly 300,000,000 patients around the world who are diagnosed with a rare disease. In the US, a rare disease is defined as any disease […]

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